WithLove Posted January 5, 2016 Share Posted January 5, 2016 Sara, do you have anyone there with you? Someone to check in on you occasionally? Link to comment
Blue_Skirt Posted January 5, 2016 Share Posted January 5, 2016 18 of those pills just today? Wow, that’s an awful lot ! I hope you can sleep well tonight. As my mother used to say: everything/everyone who sleeps, does not suffer. Link to comment
Seraphim Posted January 5, 2016 Share Posted January 5, 2016 I remember I had to take a lot of pills to avoid swelling when I had oral surgery. I had to start taking them about four hours before the surgery started. And take them for about four days after. Link to comment
sara-pezzini Posted January 5, 2016 Author Share Posted January 5, 2016 No i am alone but my parents are here quickly if i need them and my neighbour checks in on me as well. That will be fine. I think i mostly need lots of sleep for now! Link to comment
tiredofvampires Posted January 5, 2016 Share Posted January 5, 2016 18 pills -- why can't they make 2 pills that come of the strength of 9 of those pills?? Anyways, yeay, sara, for coming out of this so well!! You were brave, and I think it's all going to be a huge relief after this "hump" is over! Hope you rest well...so important for healing. Link to comment
sara-pezzini Posted January 5, 2016 Author Share Posted January 5, 2016 Haha that's what i said as well, they only had those in stock in the hospital and i had to start right away so the doc said, well then we'll do it like this. I'm sure glad it's over! And don't worry, i will sleep as much as i can because i will be very tired! Link to comment
Blue_Skirt Posted January 5, 2016 Share Posted January 5, 2016 Sara, it's bed time for you now! I know, it's still a bit early in Europe, but you had a tough day. Sweet dreams! Link to comment
sara-pezzini Posted January 5, 2016 Author Share Posted January 5, 2016 Yes i was just thinking the same! Ben up since 5.15 this morning, no sleep last night and am exhausted so i will go to sleep now mom lol Link to comment
pippy longstocking Posted January 5, 2016 Share Posted January 5, 2016 Just catching up now , so hope you are tucked up in bed fast asleep ..sleep ,proper sleep is going to help , the body needs to shut off to get on with repairing itself and also for your mental state .. you have gone through a lot and it has drained you . Thankyou vic xx I will be making my way back and catching up with everyone ...things just gone off the boil , bit its cool ..all good and I do still read to make sure everyone doing ok x sending you sweet dreams sara x Link to comment
journeynow Posted January 5, 2016 Share Posted January 5, 2016 sara-pezzini, sending healing vibes your way and hugs and comfy-feel-good blankets and all good things, with only positive side-effects. Thinking of you... Link to comment
sara-pezzini Posted January 6, 2016 Author Share Posted January 6, 2016 Haha thank you! I think the comfy blanket landed a bit hard though cause I've been wide awake for 2 hours now. Doc warned the most common side effect is getting nervous and agitated but i hoped my TN meds would prevent that. But alas I woke up 2 hours ago feeling so very nervous! And I'm shaking all over, couldn't sleep anymore so not a fun drug! I'm also very hungry but not going to give into to eating in the middle of the night! Gonna try sleep again but i thought to distract myself I'd better do something for a bit..... also the holes in the back of my head started leaking. And this is beating fluid I've been told. Yuck! Pillow was soaked haha.thank god the ones on my forehead don't leak. The way they are all positioned is jjust good enough that you can sleep on your side, not the back cause they hurt. But i sleep on my side anyways. Well off to trying again..... Link to comment
pippy longstocking Posted January 6, 2016 Share Posted January 6, 2016 aww sara bless you darling ...hope mum coming or someone coming round today so you are not sat getting yourself all in a state . Did you manage to get back to sleep ? Link to comment
sara-pezzini Posted January 6, 2016 Author Share Posted January 6, 2016 Looking back, stupid phone auto correcting, of course I'm not leaking beating fluid but brain fluid! Brb mom's here Link to comment
Silverbirch Posted January 6, 2016 Share Posted January 6, 2016 Hugs Sara. Get well soon. Xx Link to comment
sara-pezzini Posted January 6, 2016 Author Share Posted January 6, 2016 Back now, no didn't manage to get back to sleep sadly so was up real early. Mom just came over for a while and while she was here a huge bouquet of flowers came from my work! Mom could put it in a vase, almost lost a finger in the process, the vast just broke just like that, on its own. Blood everywhere, me bandaging mom up. Phew lots of excitement and work! But she takes blood thinners after her heart infarct, so it looked so bad, but even so, the wounds were pretty deep. Yikes! Link to comment
journeynow Posted January 6, 2016 Share Posted January 6, 2016 Looking back, stupid phone auto correcting, of course I'm not leaking beating fluid but brain fluid! Brb mom's here I wondered about that. Is that ok to have it leaking? Is there a risk of infection then? Thinking of you and your healing. Link to comment
WithLove Posted January 6, 2016 Share Posted January 6, 2016 Yikes, too much wound excitement yesterday!!! Take it nice and slow, Sara. We're all here, checking in on you. Hopefully your mum or another family member will be by today to check in, too. That's so nice that your work sent you flowers! Link to comment
sara-pezzini Posted January 6, 2016 Author Share Posted January 6, 2016 I wondered about that. Is that ok to have it leaking? Is there a risk of infection then? Thinking of you and your healing. Yeah that's normal, i have to put something on it to prevent infection but the holes should heal very soon, they're tiny! They don't leak anymore today....they're just a bit swollen and I'm careful not to mess around with them to prevent infection. I had read all about that online before the procedure so i was prepared for it, it's weird though. I'm also extremely tired, just took a long nap, it's funny how much of an attack this is on your body. Also no appetite for crap, so that's good! Just healthy stuff Link to comment
sara-pezzini Posted January 6, 2016 Author Share Posted January 6, 2016 Think after reading more that the blogs of the patients with this type of tumor exaggerated with the brain fluid, they all call it that but from what i read it's not, just fluid. I don't remember exactly what the doc said but probably just used the word fluid and i thought, ah yes i read about that. Stupid people exaggerating, i hate that! So think it's just fluid! Ha! My neurologist said to read up about this tumor online but not read the horror stories, well how do you differentiate? He was certainly lacking, to just send me home with no info and to go figure it out for myself.... got a sweet mail from my boss, he said he was impressed with my story and to take time to process this all.....sweet! Link to comment
Seraphim Posted January 6, 2016 Share Posted January 6, 2016 Eow your poor mom! Glad to know you are both ok! Link to comment
sara-pezzini Posted January 6, 2016 Author Share Posted January 6, 2016 Eow your poor mom! Glad to know you are both ok! Yeah that no fun! Bleeding all over the place, but she's fine now, dad bandaged her up much better than i did but of course by then the bleeding had also stopped so much easier job then! I can't stand the sight of blood! Link to comment
Blue_Skirt Posted January 6, 2016 Share Posted January 6, 2016 Sara, that sounds like a lot of drama today, you leaking, your mom bleeding, oh my god. Best recovery wishes to you and your mom! Link to comment
sara-pezzini Posted January 6, 2016 Author Share Posted January 6, 2016 Haha yeah well....we had some fun with it as well.... Got a new symptom doc mentioned, my eye lids are swollen,especially the left one so it looks like someone punched me in the eye haha. So weird all this! If in 10 years i will re-read this journal it will be a a vague memory but nice to have in writing..... Link to comment
Blue_Skirt Posted January 11, 2016 Share Posted January 11, 2016 Sara, I just wanted to check with you how you are doing. Link to comment
sara-pezzini Posted January 11, 2016 Author Share Posted January 11, 2016 That's so sweet! I'm okay but cannot take too much at the moment, too much TV or noise or talking or visitors and my head starts to hurt in a weird way and I'm still extremely tired and do basically nothing. Some nights sleep are better than others, the meds are okay, so all in all it needs time apparently! The holes are closed but do still hurt and the top of my head is still numb Link to comment
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