Seraphim Posted December 16, 2018 Author Share Posted December 16, 2018 Indeed! But also still terrified, i don't know what i would do if it ever came back, last year i thought oh a year without pain sounds so wonderful but it is too short, a year is nothing! I know eventually mine will be back but I try to ignore that thought . Wishing you a life forever without it ! Because I still get remissions they probably won’t do an MVD until I am much worse. Link to comment
sara-pezzini Posted December 16, 2018 Share Posted December 16, 2018 Yes great that you have to many pain free years in between but still the knowing it'll be back is terrible, like a ticking timebomb.... All i can say is if it ever comes to it, an MVD is not as bad as you anticipate! It's no Picknick but quite doable Link to comment
Seraphim Posted January 24, 2019 Author Share Posted January 24, 2019 Having a flare today. My tongue is on fire. 😩 Link to comment
SherrySher Posted January 24, 2019 Share Posted January 24, 2019 So sorry to hear :( I hope the flare up goes away soon. Link to comment
Seraphim Posted January 24, 2019 Author Share Posted January 24, 2019 It seems to have stopped for now thank God. So sorry to hear :( I hope the flare up goes away soon. Link to comment
Seraphim Posted April 9, 2019 Author Share Posted April 9, 2019 Having a small flare. 😰 Link to comment
sara-pezzini Posted April 10, 2019 Share Posted April 10, 2019 Ugh, fingers crossed it goes away soon again! Remains very scary Link to comment
Seraphim Posted April 10, 2019 Author Share Posted April 10, 2019 It might be gone now. I hope! Thanks Sara! How are you doing? Ugh, fingers crossed it goes away soon again! Remains very scary Link to comment
sara-pezzini Posted April 10, 2019 Share Posted April 10, 2019 Good to hear!!! I'm still pain free!! For almost 17 months now... Besides that I'm also doing very well, only thing that is left since the surgery is i cannot handle stress anymore, stuff that wasn't stressful before now is and my reaction to it is different, and if there are a lot of stressful things happening at once, which was in December, then my brain sort of short-circuits and i get physical reactions, very weird but this is a part of the brain injury that I'm left with, but better that than that pain! I have my life back and I'm still immensely grateful! Link to comment
Seraphim Posted April 10, 2019 Author Share Posted April 10, 2019 Great to know you are doing well!! I agree anything but the pain! Link to comment
Seraphim Posted August 25, 2019 Author Share Posted August 25, 2019 Had a small flare last week. Link to comment
Seraphim Posted December 10, 2019 Author Share Posted December 10, 2019 A flare since yesterday. 😣 Link to comment
Seraphim Posted January 3, 2020 Author Share Posted January 3, 2020 I had 3 small flares over the Christmas season and I really had to wear my night guard to avoid biting through my teeth and causing pressure on my facial nerves. I know eventually there will be a day this never goes away other maybe surgery. Even that is not guaranteed. Link to comment
Seraphim Posted January 20, 2020 Author Share Posted January 20, 2020 I had a small flare last night but gone today. I hope I am not coming out of remission. Link to comment
Seraphim Posted January 28, 2020 Author Share Posted January 28, 2020 Another flare today 😱 Link to comment
Seraphim Posted February 25, 2020 Author Share Posted February 25, 2020 Another flare. My tongue is swollen and burning and so are my gums. Link to comment
Seraphim Posted March 3, 2020 Author Share Posted March 3, 2020 Had another flare. I really wonder if I’m coming out of remission. Link to comment
Seraphim Posted March 23, 2020 Author Share Posted March 23, 2020 Sad to say but I think it has returned. Having attacks almost every day. Link to comment
Seraphim Posted May 14, 2020 Author Share Posted May 14, 2020 I keep having flares. Terrified to come out of remission. Link to comment
Seraphim Posted May 17, 2020 Author Share Posted May 17, 2020 Wow! I went into remission 3 years ago today !! Link to comment
Batya33 Posted May 17, 2020 Share Posted May 17, 2020 Wow! I went into remission 3 years ago today !! Wonderful - such progress! Link to comment
Seraphim Posted May 18, 2020 Author Share Posted May 18, 2020 Four years ago today I was diagnosed with trigeminal neuralgia . The specialist said I had had since 2009 . And crazy almost a year to the day I went back into remission again. Link to comment
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