Pain after cystitis for weeks

[katrina1980]

It can easily be an ovarian cyst they are very common and not dangerous.

 

It can also be an ovarian tumor. It can be harmless if it's benign.

 

It's good that you'll be seeing a gynecologist and get to the bottom of this.

 

Yes and it can be deadly if it's a malignant tumor. Important to consider all possibilities here.

 

OP, DON'T neglect your health. Not suggesting you are but again, I cannot believe it took this long for your doctors to recommend you see a effin gynecologist.

 

Hopefully he/she will do a CT scan and biopsy and determine what EXACTLY you have and how serious/not serious it is.

 

If it's a tumor, they should refer you to a gynecologic oncologist.

 

Fingers crossed it's NOT serious.

 

Good luck and keep us posted.

[cryingalways]

It took a very long time to get referred yeah. I have been on st them for months and I pretty much had to freak out at them to get a blood test and scan and now they've found something they've referred me urgently cause they probably know they ed up.

The blood tests were fine so there's many things it won't be already from that but yeah whatever it is (ultrasound guy seemed pretty sure it'S a fibroid) it needs to be dealt with SOON.

I haven't done anything wrong. It's the health system that's terrible. I had to fight to be in this position at all.

[Seraphim]

Well, it is called a fibroid if it deals with the uterus. A cyst if it deals with an ovary. I can't see ONE fibroid being the cause of huge distress though. I have thousands. All never treated and I am alive. Fibroids are not cancerous at all .

[katrina1980]

Well, it is called a fibroid if it deals with the uterus. A cyst if it deals with an ovary. I can't see ONE fibroid being the cause of huge distress though. I have thousands. All never treated and I am alive. Fibroids are not cancerous at all .

 

Her doctors NOW say it's her ovary though.

 

Who are these doctors? Again, shocked at the incompetence! Geez!

 

Where do you live? Are you in the U.S?

 

Unacceptable.

[Seraphim]

Her doctors NOW say it's her ovary though.

 

Who are these doctors? Again, shocked at the incompetence! Geez!

 

Where do you live? Are you in the U.S?

 

Unacceptable.

 

Not all ovarian cysts are cancer. Yes, get it checked out but don't terrify the hell out of her. The 30% of women in childbearing years have fibroids and about 70% by the time they reach my age. This really isn't a rare thing at all .

[Seraphim]

And not every Dr is a " local yocal " unless they are American.

[katrina1980]

Not all ovarian cysts are cancer. Yes, get it checked out but don't terrify the hell out of her. The 30% of women in childbearing years have fibroids and about 70% by the time they reach my age. This really isn't a rare thing at all .

 

I realize they are not all cancer. In fact, like you said, more often than not ...these cysts/tumors are benign.

 

But there is a possibility it could malignant, it happens! That is all I am saying.

 

It could also be any other number of things, OP should get it checked to be sure.

 

Which it sounds like she is doing, fabulous!

 

Going forward, getting second and even third opinions can be beneficial too.

 

Never ever neglect your health and consider ALL possibilities.

 

Not trying to scare her, but it is important to be realistic too.

[thejigsup]

And not every Dr is a " local yocal " unless they are American.

 

I know you're a very kind person, but that was an unkind thing to say. We have many, many, EXCELLENT local doctors down here that often work for little or no pay to help in situations like these. Plus, many of our doctors come from Canada. We appreciate them, but why do many of your specialists end up down here? That I don't get.

[Seraphim]

I know you're a very kind person, but that was an unkind thing to say. We have many, many, EXCELLENT local doctors down here that often work for little or no pay to help in situations like these. Plus, many of our doctors come from Canada. We appreciate them, but why do many of your specialists end up down here? That I don't get.

 

They end up down there for mulah. Doctors here have a salary cap . They are paid by a province not the customer.

 

It wasn't mean. What I was saying is that there are good drs everywhere not just the US. I just want people to realize it is an international forum.

 

I believe the OP is the the UK.

[Seraphim]

I know you're a very kind person, but that was an unkind thing to say. We have many, many, EXCELLENT local doctors down here that often work for little or no pay to help in situations like these. Plus, many of our doctors come from Canada. We appreciate them, but why do many of your specialists end up down here? That I don't get.

 

JiG ,I was not saying that American drs are that it was not meant to be read that way but for Americans to realize other countries have great drs and good health systems. I am sorry it was read that way . Sometimes as other nations it grates on our nerves a bit when we hear American, American... it is not meant as a slight but please remember other people have great things in many different categories . Not " you " specific but a general you.

[katrina1980]

JiG ,I was not saying that American drs are that it was not meant to be read that way but for Americans to realize other countries have great drs and good health systems. I am sorry it was read that way . Sometimes as other nations it grates on our nerves a bit when we hear American, American... it is not meant as a slight but please remember other people have great things in many different categories . Not " you " specific but a general you.

 

Victoria, with all due respect to you, everyone in the UK and all over the world, and the doctors who treat them, there are good and bad doctors everywhere.

 

Personally, I live in the US and DON'T trust doctors here .... one in particular almost killed me by mis-diagnosing me and prescribing the wrong meds!

 

Could have filed a malpractice lawsuit for that one but decided wasn't worth it.

 

Our healthcare system is seriously flawed to say the least.

 

That said, I am sure there are good doctors here too, I just haven't encountered any.

 

Re the OP's situation, regardless of where she lives, any doctor(s) who refuses to give a blood test, tells her she has "a" fibroid or "something" .... refers her to a urologist when clearly her condition warranted she see a gyn, which took them over a MONTH to realize, at which point they inform her it is actually her ovary, is seriously incompetent imho.

 

Like in the US, I have no doubt there are some good, even great doctors in UK too, but the doctors who treated her in *this* situation aren't part of that group.

 

Again jmo based on everything OP has posted to date.

 

Good luck OP, and please keep us posted!

 

Fingers crossed it is nothing serious and you feel better soon!

[Loralora]

I agree the doctors were too slow.

 

Allthough she might have more than one condition. She may have to go to the urologist after all once she's finished with the gynecologist.

 

She might have two conditions at the same time since she has told us that she has already been diagnosed with cystitis.

 

Good luck hope you keep us informed!

[Seraphim]

Victoria, with all due respect to you, everyone in the UK and all over the world, and the doctors who treat them, there are good and bad doctors everywhere.

 

Personally, I live in the US and DON'T trust doctors here .... one in particular almost killed me by mis-diagnosing me and prescribing the wrong meds!

 

Could have filed a malpractice lawsuit for that one but decided wasn't worth it.

 

Our healthcare system is seriously flawed to say the least.

 

That said, I am sure there are good doctors here too, I just haven't encountered any.

 

Re the OP's situation, regardless of where she lives, any doctor(s) who refuses to give a blood test, tells her she has "a" fibroid or "something" .... refers her to a urologist when clearly her condition warranted she see a gyn, which took them over a MONTH to realize, at which point they inform her it is actually her ovary, is seriously incompetent imho.

 

Like in the US, I have no doubt there are some good, even great doctors in UK too, but the doctors who treated her in *this* situation aren't part of that group.

 

Again jmo based on everything OP has posted to date.

 

Good luck OP, and please keep us posted!

 

Fingers crossed it is nothing serious and you feel better soon!

Misdiagnosis ,I will agree is pretty common. A lot depends on the skill and experience of the doctor.

[cryingalways]

Hey! Um yeah I'm in the U.K. and it is terrible they didn't refer me to a gynecologist earlier. I'm seeing one in a couple days now though, and as I said I'm pretty certain cancers are detected by a blood test and I have had many before my scan and they came back fine.

 

Also they can tell whether it's a fibroid or not from the scan alone so if I'm told it's a fibroid by the only person who has seen the scan...I'm fairly certain that's what it is. And the gynecologist has the scan now and if they thought it was something really serious they would get me in pronto.

 

Could still affect my fertility though sure. Which is worrying yes.

 

Anyway, I also agree there's a chance I'll end up at the urologist again too.

 

I'll keep you posted on what happens though. If I can share this info and save someone all the hassle I've been though that would be good at least.

[katrina1980]

 

Also they can tell whether it's a fibroid or not from the scan alone so if I'm told it's a fibroid by the only person who has seen the scan...I'm fairly certain that's what it is. And the gynecologist has the scan now and if they thought it was something really serious they would get me in pronto.

 

 

Yes I agree, they would let you know pronto if it was something more serious, (or one would hope they would).

 

And since seeing the scan, they suspect it's only a fibroid or fibroids that is fabulous and great news!!

 

It's just that you said earlier they were saying it was now your ovary and that scared me a bit.

 

They're saying it's on my ovary now, not womb. My gp just rang me really late to tell me I should see a gynecologist. She said to try and change my urologist appointment to gynacologist if I can in the morning but if not I will see a gynacologist in two weeks. So much to take in!

 

In any event, good luck and keep us posted.

[Seraphim]

Just know that one fibroid isn't a massive issue . They can be removed . And depending upon where they are it might not be a big issue for healing . I refused surgical removal of mine because if I got pregnant it could've caused a uterine rupture. Keep in mind though I had very many fibroids and they were very big . Now I am post menopausal and haven't had a period in three years and they called me no problems at all .

[cryingalways]

They say it's a cyst. I'm getting a blood test tomorrow and an MRI soon. The doctors were so , I wanted to talk about my constant cystitis pain but they just didn't care and said it wasn't connected. Then I almost fainted and got put in a wheelchair and cried

 

It's been a sad day.

 

I called my GP and she said she thought it was connected to my bladder problems though and to have the tests before we decide what to do next.

 

I imagine I'll need it removed.

[Wiseman2]

Try to remain calm, composed and most of all accurate about your symptoms. Hysteria won't help you heal and won't help the doctors help you if you can't describe symptoms accurately. OMG I'm dying! is not helping you or helping the doctors take an accurate history of your symptoms and problems. Maybe a referral to a therapist to help with any anxiety surrounding this would help.

[Seraphim]

Cysts are not always cancer. Have you heard of polycystic ovaries? Not cancer. Needs medication ,exercise and dietary change but not cancer.

[cryingalways]

Wiseman...dude. I have a condition where I faint when I get really worried, I've always had it. It's not something I choose to do or enjoy. It just happens, and I can control it enough to not faint but I know i have to sit with my head towards the ground to do it, so that's what I did and when I explained this to the nurse she wheeled me off. I started crying involuntarily as well. It was probably just upsetting going through the shock of the appointment then almost fainting. I haven't almost fainted in a good many years too.

[Loralora]

Hi..I don't mean to brag but I told you it can easily be a cyst go back and read my previous posts.

 

I also told you, that you need to see both a gynecologist and urologist because you might have two simultaneous conditions at the same time, which is pretty common having more than one condition at the same time.

 

I can also surely say these two conditions (your cystitis and ovarian cyst) are not connected with each other.

I can also say it is NOT Polycystic Ovarian Syndrome since that is characterised by multiple(more than one cyst in the ovary) and also that condition is accompied by other symptoms such as having irregular menstrual cycles, acne, obesity and lotts of thick black hair growing in the body and face. Since you don't have these above mentioned symptoms, I'm guessing it isn't your condition.

 

It was just a simple cyst in an ovary. It is farily common.

 

Cysts usually are no big deal and are pretty common in ovaires. Most of the time they are not dangerous meaning they are usually benign. You do need to get it removed and sent it for a biopsy though just in case.

You should be very happy it was a cyst and not a tumor.

 

Sorry for braging but I am a medical student and when I am right about medical conditions and scenarios I get really excited

 

About your cystitis, you still need to see an urologist. Although ovarian cysts can also cause pain and the significant pain you might have felt could have been because of that.

 

But you still need to go and get a check up of all of your urinary tract, urinary bladder and kidney. You need to do an ultrasound. And you could also do an x-ray with barium contrast (check for kidney stones or any other conditions).

 

Chronic cystitis can cause serious complications/infections (including in kidneys) if left untreated and neglected.

 

Excuse my excitement about being right! I wish you well and don't worry too much.

 

May I also recommend taking multivitamins daily (especially vit.C it boosts your immunity and helps you fight infections easier) and drinking a lot of water.

 

Excuse my spelling if I made any mistakes I am not an American and I am also typing very quickly.

 

All the best for you!

[cryingalways]

Hey! Thank s for your advice.

 

I have had an ultrasound. My kidney and bladder are totally fine.

[cryingalways]

UPDATE:

I paid a lot to see a private urologist who prescribed me to take nitrofuratin after I have sex. This has completely stopped the reoccurring infections!

However I still have pain in my urethra. I had a cystoscopy (incredibly painful for me-they put a camera up my urethra..)and my bladder looks fine, so now they’re doing another MRI of my urethra. The last one made me faint, so I’m really not looking forward to this, but I need to know what is wrong with me/if anything is wrong.

So if you have reoccurant cystitis I highly suggest seeing a good private urologist and getting this long term, as and when, low dose, antibiotic prescription. It works.

[cryingalways]

And they were wrong about the cyst on my ovary. They were going to give me surgery then the mri showed there wasn’t one...

 

There is a cyst on my spleen but they think it looks ok, it’s not grown etc.

[cryingalways]

EDIT: I just wanted to let future readers who are having similar issues know what happened for me.

 

So I went to see a private urologist who cost a few hundred and it was totally worth all the money! As I was expecting, he told me I needed to take an antibiotic after having sex from now on, and I haven't had cystitis since! I even take just a quarter of an antibiotic (as it does affect your gut but it's worth it to not have the pain) now and it still works. The antibiotic is called NITROFURATIN. And it's saved my life.

 

I also had several procedures for them to look into my urethral pain I was still having, which my guess would be from having cystitis for so many years and it screwing up my nerves.

They put a camera up my urethra while i was awake (pure torture) and put me under anesthesia to do the same deeper (terrifying). I also had several mri's while this was happening and fainted twice from having drips put in me.

The conclusion was to put me on AMITRIPTYLINE to numb the pain somewhat. It made me extremely sleepy at first but now I take 3 a night and I'm ok. This has however possibly led to me getting migraines again (I had been a sufferer a few years back) so I had to see a specialist for that and eventualllyyyyyy got on some pills that help stop them SUMATRIPTINE.

 

Overall though I am infinitely better. I can live! I would also add that making sure you get enough sleep, not taking drugs (big one here, defo no), limiting your alcohol intake/cigarettes, reducing your stress levels and going to the gym/exercise (defo do this one) help as well.

 

I hope I might have helped someone, cause it was a rough road for me that's for sure. Take care 😊🌈