sara-pezzini Posted August 30, 2016 Author Share Posted August 30, 2016 I'm still in Sweden! Cute cute adorable niece! Link to comment
Seraphim Posted August 31, 2016 Share Posted August 31, 2016 That is nice! I got to see my brother and neices this past weekend. ❤️ Link to comment
sara-pezzini Posted August 31, 2016 Author Share Posted August 31, 2016 Aww that's nice! I'm back in Holland! Also happy to be in my own house and have my own stuff around me! Tired as well, just took a nap....even had to take a nap on Sunday when i was in Sweden, damn meds! But at least i was painfree! Yay!!!!!!!! Even ate a hamburger!!! Like you're supposed to eat a hamburger and it was great! No pain and the best burger i ever ate! Though I'm glad to be home i do miss my cute niece so much! She is so very adorable! She speaks English now and she tries so much as well, she only spoke English to us and you can really understand her, so cute! She and i were playing a lot and she loved that and she gave me such big hugs and kisses each time. Later on she also teased me a lot and had so much fun with that, and each time she'd say, i kid you, i kid you! Awwww!so funny and so cute..... I said do you kid everyone? No of all people i kid you! Hahaha So i said sarcasticly well thank you, and she went, why you thanking me? Haha She knows I'm her daddy's big sister and she said her daddy talks Swedish but not all Swedish cause he's not from this land, she and mommy talk all Swedish and daddy a lot Swedish but not all the words haha She asked me my favorite color, it's pink btw and my kitchen is pink. I made it pink last summer. She's been to my house for the last time just after my radiation and she loved the kitchen and was so excited then. So i asked her if she remembered my house and she was thinking, and i said she was in my house and the kitchen is pink. She was really thinking and trying to remember and then her face lit up and she said yes it is so beautiful! Haha She's 5 so i think she's very smart for her age! And so sweet as well, because while she likes to "kid" me, we were walking outside and got into the park with a pretty step hill we had to get down to and it had been raining and i was dizzy, she ran down of course like kids do, me and my mom hesitated, my mom managed but i couldn't cause i was so dizzy. She ran back up, took my hand and slowly guided me down! How adorable! Link to comment
sara-pezzini Posted September 1, 2016 Author Share Posted September 1, 2016 It's my birthday today, that just isn't as much fun as it used to.....turning 44 now. Ugh! I remember how excited i was as a child but now, meh.... Also don't celebrate it, parents come in a little bit and one friend comes tonight... But no pain! Woohoo that is something to celebrate! R is on holiday and doesn't know it's my birthday so that's too bad... I kind of miss him but it's also good to be out of that excitement and high and see what's left, see how we both feel.... We saw each other every workday and were in touch almost every day, now we're not and i seem to think that's fine too....now i can think about how i feel.... Link to comment
sara-pezzini Posted September 1, 2016 Author Share Posted September 1, 2016 my phone died today!!!!!!!!!!!! it will not start back up again.......took it for repair and i am so scared that they cannot fix it without losing everything on it... my whole life is in that phone!!!!!!!!! thousands of pics, all the phonenumbers, thousands of whatsapp message conversations that i would feel awful if i lost them..... some people who i cannot even reach cause i don't know their numbers and have not written them down.... on my birthday so i cannot get my birthdaywishes either... what a joke! pics of my niece, pics of R!!!!!!!!!!! CRAP!!!!!!!!!!!!!! Link to comment
Seraphim Posted September 2, 2016 Share Posted September 2, 2016 Happy belated birthday Sara!!! Did they fix your phone!? Link to comment
sara-pezzini Posted September 3, 2016 Author Share Posted September 3, 2016 thank you Vic!! no not yet, am still waiting for them to let me know something.... i really hope to get my pics and whatsapp chats back... Link to comment
sara-pezzini Posted September 3, 2016 Author Share Posted September 3, 2016 my phone isreally dead, the store couldn't fix it...... so now i am using an old phone,and turns out i lost all my photos, all my whatsapp chats, and all myphonenumbers as well!!!! i was veryupset about that! got back most numbers but i still didn't have R's number, soi mailed him, he's on vacation now, i told him what happened and asked if hewould whatsapp me is he read the mail, immediately he apped me hahaha, wemessaged a bit, asked him how it was over there and he asked about Sweden, itold him i was pretty upset about losing my chats and my photos and i named afew of the ones he send as a joke, he then send me pics of hwat he was doingand a SELFIE!!! he send me a freaking selfie!!! he knew i was upset aboutlosing pics of him as well.....so yeah...losing my phone,,,puh who cares...igot a selfie!!!!! LOL butterflies.....i'm 16 again.......hahaha later i saw he had also mailed me before apping and he had mailed me his phonenumber..... and has been sending me photos ever since.... he's adorable hahaha Link to comment
sara-pezzini Posted September 13, 2016 Author Share Posted September 13, 2016 in pain again and nowhere to go with the meds anymore so i am contemplating a procedure and need to be smart about which one......crap! Link to comment
Seraphim Posted September 13, 2016 Share Posted September 13, 2016 Awwww Sara I am rooting for you ❤️ I was wondering where you were . Link to comment
sara-pezzini Posted September 15, 2016 Author Share Posted September 15, 2016 yeah sorry, i'm in pain and my phone is still not back, don't want to open up the laptop each time....somehow on the laptop only on here the keyboard keeps skipping keys making it very very annoying to type!! Link to comment
Seraphim Posted September 15, 2016 Share Posted September 15, 2016 Awwww a big hugs from me. ❤️ Link to comment
sara-pezzini Posted September 15, 2016 Author Share Posted September 15, 2016 thank you! i've considered the 3 options and i'm leaning towards the janetta surgery, has the best result longterm then the others but it is major surgery.......in my brain.....yikes!!!!!! the gamma knife i would do again in a heartbeat but that has the worst results and it starts working after 3 to 6 months, wow! so yeah......scary stuff!!!! Link to comment
Seraphim Posted September 15, 2016 Share Posted September 15, 2016 For sure they aren't even considering me for surgery yet. But I would have the MVD done. Link to comment
sara-pezzini Posted September 15, 2016 Author Share Posted September 15, 2016 yes i agree, but it's still brain surgery......scary as hell!!!!! Link to comment
sara-pezzini Posted September 15, 2016 Author Share Posted September 15, 2016 aww troll thread deleted......was so much fun! Link to comment
sara-pezzini Posted September 16, 2016 Author Share Posted September 16, 2016 read many stories about the janetta/ MVD and a lot of them are positive, even read stories of people being pain free for 12 years!! that sounds like a dream!! it's a lot to take in, so will discuss it with my parents first when they come back from their holiday, meanwhile the pain is a little less today!!! and the temperature has dropped 10 degrees! last few days it was extremely hot and my TN reacts to that, so thank god it seems to be going away again ,knock on wood! Link to comment
sara-pezzini Posted September 17, 2016 Author Share Posted September 17, 2016 spoke to my mom while she was on her holiday, and i have decided to go for the surgery! scary as hell though!! now call the doctor this week to get the ball rolling and hopefully i am a good candidate for it....i think so.....and hopefully i can choose my own date again, cause i want it done in january.....for my own reasons....they have a wait list anyways....and have to come in for a talk first so it will not be before then even if i did want it... i am scared however! Link to comment
Seraphim Posted September 18, 2016 Share Posted September 18, 2016 You are in my thoughts Sara. Hopefully you get it done soon. Link to comment
sara-pezzini Posted September 19, 2016 Author Share Posted September 19, 2016 october 24th is the doc's appointment! and then we will first have a talk and there is a wait list of 18 weeks so it'll be next year, which is what i want as well, first going on a holiday to Austria!! so things have been set in motion...and i am suddenly nervous, not sure why, but that'll fade again.... Link to comment
sara-pezzini Posted September 23, 2016 Author Share Posted September 23, 2016 i told my manager this week , and i told my old manager as well, he is the one who's wife also has a benign brain tumor......he was so very supportive, told me i am doing the right thing and that there is nothing to be scared about and it will all be fine.... so sweet!he really made me feel better....and didn't even think about work and that i would be absent a longer period of time again..... Link to comment
sara-pezzini Posted September 25, 2016 Author Share Posted September 25, 2016 i just joined two groups on facebook, one for TN and one for an acoustic neuroma......have to say so far it is really helpful to tell you story and talk to people who know!! didn't even know they existed....(the groups, lol!) Link to comment
Seraphim Posted September 25, 2016 Share Posted September 25, 2016 i just joined two groups on facebook, one for TN and one for an acoustic neuroma......have to say so far it is really helpful to tell you story and talk to people who know!! didn't even know they existed....(the groups, lol!) Omg all these groups do is scare the crap out of me. Link to comment
sara-pezzini Posted September 25, 2016 Author Share Posted September 25, 2016 Omg all these groups do is scare the crap out of me. well not te ones over here....they are all very sweet and supportive and give tips and really understand you!!! i never had FB but i'm glad i do now!! no scary stories....just be there for each other Link to comment
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