limichelle Posted January 18, 2020 Share Posted January 18, 2020 I have weird tissue growing inside my bladder that they thought was cancerous back in November. You all were with me on that journey. Luckily the tissue turned out benign. I thought for sure removing the tissue would be beneficial to my health and the struggles I face with various bladder issues. Apparently it’s not so easy. It’s been confirmed that I now have the same type of tissue growing outside my bladder into my pelvis. I asked the Urologist is this Endometriosis? I had to have a hysterectomy because of Endometriosis years ago. So my fear is it’s come back. The Urologist doesn’t know. However she wants me to have a Ct Guided needle biopsy under sedation at the hospital by a Radiologist . I’m doing that February 4th. I’m also seeing the Gynecologist because this May be in his field of experience now. The tissue in the pelvis is attached to the tissue in the bladder. It’s dug it’s way into the bladder. I’m just struggling to get my health back and also I am continuing on my weight loss journey. At first the doctor thought it was a mass that took up half the bladder but on second glancing and reviewing my films and going over what she saw. She’s confirmed it’s this unexplainable tissue. My thought is endometriosis. Her thought is I’m still not out of the woods with the cancer scare. She’s leaving the practice and I’ll be seeing her associate afterwards, after the biopsy. He will have all my information from her. Please keep me in your thoughts. I’m hoping to have way better understanding of what this is after this biopsy in February. I’m also going to get various Doctors opinions as well since this is confusing the Urologist and Radiologist whom is doing the biopsy. Without physically seeing the tissue outside of my bladder they don’t know what the heck is going on. All they can do is Biopsy. My case as other doctors have put it, my Hematologist, and Nephrologist along with Urologist says “is unique and bizarre.” Yuck! I hate when things can’t be explained right away. Thank you for taking time to read. Link to comment
This topic is now archived and is closed to further replies.