Seraphim Posted November 18, 2017 Share Posted November 18, 2017 It sounds like things went very well considering Sara! Link to comment
HeartGoesOn Posted November 18, 2017 Share Posted November 18, 2017 Great news, Sara. Wishing you a speedy recovery! Link to comment
catfeeder Posted November 21, 2017 Share Posted November 21, 2017 Thrilled for you that he found that nerve. This could mean a whole new lease on life for you, Sara. Keeping you in my thoughts, and so happy to hear of your progress so far. Big hugs to you and your lovely brother. Love, Cat Link to comment
sara-pezzini Posted November 21, 2017 Author Share Posted November 21, 2017 been home since yesterday now, unable to sleep tonight lol many many hot flashes plague me..... told them will there be side effects to kicking morphine, yes ma'am more sweating.... sheesh even more? But yes turns out to be true tonight! Own home didn't feel like home and bed didn't feel like mine yesterday, but that's better now, just those stupid hot flashes and being wide awake in the middle of the night! That's the dexamethasone for you......4th time i take this drug now..... Keeps the brain from swelling, so important but a nasty drug! I'm able to lay on that side of my head luckily, last time i couldn't for 3 weeks! But this time i cannot sleep on my usual left side cause they hit a nerve in surgery...... lol.....yup They put me on my left side when i was out and when i woke i had no sensation in my left arm and hand. It's slowly coming back but it feels as if the arm is sleeping. My physio therapist came today and she determined that the nerve in my neck is bruised and this causes the sensations. She'll come again this week and the rest takes time. Oh well it isn't TN! I was home even before brother though haha nice one! But that was such a surprise! Mom told me today that dad made a mistake by talking about it in the hospital, didn't register! Not many things did to be honest.... and i have since forgotten a lot! Benefit of brain surgery and anaesthesia! Pfff try to sleep again but hot flashes still there..... think I'm gonna open the window....... and it's cold here..... lol..... Ooh yeah, my mom came today to cook my favourite food and most of it i couldn't taste! My taste sense is still mostly gone! Not as bad as the pain but freaking annoying! Can taste chocolate though lol lol Link to comment
Seraphim Posted November 21, 2017 Share Posted November 21, 2017 Oh yeah, the sweating kicking opiates is NASTY! I was an addict for a long time on legal opiates and trying to get off them made me so so so sick each and every time. Now I have been off for many years , thank God! I am so happy you are doing so well considering. Is someone staying with you? Link to comment
sara-pezzini Posted November 21, 2017 Author Share Posted November 21, 2017 haha yeah it's really the worst! And i am in menopause!! No I'm by myself, at least today i wasn't and piece of tomorrow i won't be either... but i need some alone time!! Not a minute of peace for myself in the hospital is really bad for me! Wednesday i will be alone..... but i don't have to do anything and i make sure i take no showers while alone lol.... cause i can get dizzy from them.... but today's was fine! But man still wide awake..... for 2 hours now..... and it's the middle of the night here..... And i have to slowly wean the dexamethasone until December 4th..... will be a looooong period! At least I'm almost done with the morphine...... Glad I'm not sick otherwise from it but the sweating! Phew man! They don't tell you that in the hospital...... well they did but not that it was so bad lol...... but yeah anything's better than trigeminal neuralgia! You know! Link to comment
Seraphim Posted November 21, 2017 Share Posted November 21, 2017 Yeah. I am having a flare right now. While not horrible it is not comfy either. I am still overall in a remission right now but I get the odd flare. Link to comment
sara-pezzini Posted November 21, 2017 Author Share Posted November 21, 2017 they are so annoying! And when you don't have them yet you think what all the fuss is about haha well this! I'm still awake......4 hours now...... that sucks! New hot flashes keep coming..... ugh.... Been reading my journal on here and some posts are literally what the heck did i mean there? Swiping on the phone with meds should be banned lol Link to comment
Adge Posted November 21, 2017 Share Posted November 21, 2017 Well done Sara - people like you are a true inspiration to many many others. Link to comment
sara-pezzini Posted November 21, 2017 Author Share Posted November 21, 2017 took another one of morphine off and one pill for the wound! Let's see if that goes well! I now have only 5mg of morphine left, want it gone as quickly as possible and no more hot flashes please! Butt 5mg is nothing! Then all the other meds.......... Link to comment
Seraphim Posted November 22, 2017 Share Posted November 22, 2017 Still pain free Sara? Link to comment
Capricorn3 Posted November 22, 2017 Share Posted November 22, 2017 Wishing you a speedy recovery Sara. ((Hugs)) Link to comment
sara-pezzini Posted November 22, 2017 Author Share Posted November 22, 2017 Yes still pain free! Do have a have now but i took one of the pills off for that as well, but i can take one now so i think I'll manage that, want to get rid of those ones as quickly as possible too. The ones for the swelling of my brain, dexamethasone, i can't lose quicker, they are on a schedule and everyday one less until December 3rd..... they too give hot flashes haha Slept better last night and the wound stayed dry even when i forgot to put something on my head, i was still scared to just sleep with it, but i forgot the thing downstairs and going back was also not any option... so tried this and it was okay. Feels weird all the small wires coming from my head! But no tn yet! Last time that started again one week after the surgery so yesterday was psychology critical but nothing happened! Link to comment
sara-pezzini Posted November 22, 2017 Author Share Posted November 22, 2017 See another mistake now....... meant to say i did have a headache then...... ugh.... stupid phone! Headache got worse and needed to add more paracetamol...... it's good now! Link to comment
Seraphim Posted November 22, 2017 Share Posted November 22, 2017 Wires in your head? What? Link to comment
sara-pezzini Posted November 22, 2017 Author Share Posted November 22, 2017 haha yeah that one was good! Uhm how do you call it in English..... it dissolves and it keeps the wound edges together........ stitching i suppose! And after a few weeks it dissolves... but for now it feels weird.... all these small wires there Link to comment
Seraphim Posted November 22, 2017 Share Posted November 22, 2017 haha yeah that one was good! Uhm how do you call it in English..... it dissolves and it keeps the wound edges together........ stitching i suppose! And after a few weeks it dissolves... but for now it feels weird.... all these small wires there Oh yes yes, stitches! I get it now! Link to comment
sara-pezzini Posted November 22, 2017 Author Share Posted November 22, 2017 Hahaha thank god..... didn't know how else to explain it lol!! Link to comment
sara-pezzini Posted November 22, 2017 Author Share Posted November 22, 2017 God I'm so angry right now and yes i have to try to stay calm Vic hahaha But i asked the neighbours to not drill holes and not do carpentry for a few days, explained why and there is one who doesn't give a rat's ass unfortunately..... was slamming doors the day i got home from the hospital and is now drilling and doing carpentry..... it hurts my head! Sheesh some people are just rude and inconsiderate! And they live beneath me...... know they don't like me and vice versa but still with something like this you'd think they'd care a bit..... nope...... Good to know! Good to know! Link to comment
Seraphim Posted November 22, 2017 Share Posted November 22, 2017 God I'm so angry right now and yes i have to try to stay calm Vic hahaha But i asked the neighbours to not drill holes and not do carpentry for a few days, explained why and there is one who doesn't give a rat's ass unfortunately..... was slamming doors the day i got home from the hospital and is now drilling and doing carpentry..... it hurts my head! Sheesh some people are just rude and inconsiderate! And they live beneath me...... know they don't like me and vice versa but still with something like this you'd think they'd care a bit..... nope...... Good to know! Good to know! Well, you know what to do when they are ill. Lol Link to comment
Seraphim Posted November 22, 2017 Share Posted November 22, 2017 I am lucky;my house is fully detached. Most military housing is only semi. The horror stories..... I just thank God my husband chose this house !!! I share a driveway but my neighbours right now are lovely . Link to comment
sara-pezzini Posted November 22, 2017 Author Share Posted November 22, 2017 Well, you know what to do when they are ill. Lol Exactly! 20 apartments in one building here and you hear everything...... annoying...... but this was too much! Link to comment
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