sara-pezzini
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Everything posted by sara-pezzini
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Good to hear!!! I'm still pain free!! For almost 17 months now... Besides that I'm also doing very well, only thing that is left since the surgery is i cannot handle stress anymore, stuff that wasn't stressful before now is and my reaction to it is different, and if there are a lot of stressful things happening at once, which was in December, then my brain sort of short-circuits and i get physical reactions, very weird but this is a part of the brain injury that I'm left with, but better that than that pain! I have my life back and I'm still immensely grateful!
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Ugh, fingers crossed it goes away soon again! Remains very scary
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Bohemian Rhapsody just now, loved it!! Great movie, well done and although Freddie is spot on, i also loved the casting of Brian May, very very well done! Was in tears the final half hour of the movie
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Oh no!!!!! Hugs
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Yes great that you have to many pain free years in between but still the knowing it'll be back is terrible, like a ticking timebomb.... All i can say is if it ever comes to it, an MVD is not as bad as you anticipate! It's no Picknick but quite doable
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Indeed! But also still terrified, i don't know what i would do if it ever came back, last year i thought oh a year without pain sounds so wonderful but it is too short, a year is nothing!
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Oh so good to hear!!! Been reading back our threads a while ago and unbelievable what we've been through! No more taking things for granted, feel blessed every day, especial given how extremely difficult it is to get rid of this pain and how it doesn't happen more often than that it is successful!
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Ooh scary, i saw the thread was updated and i got worried!! Glad to read you're still doing well!!!!! Me too, for 13 months now already and 11 months free of meds! Will be a great Christmas for both is us, something to be really grateful for!! Xxx
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Wow that's so very special!!! Yes that would absolutely give me chills if I saw that
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Wow!! Here in Holland there is zero attention for trigeminal neuralgia awareness day, although i remembered on my own... This needs to be a worldwide thing and there needs to be more awareness to maybe eventually find a cure for everyone! I am still terrified that it'll come back one day, i think i will always live with that fear
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I agree! Its annoying and i usually ignore them.... but you're right, they probably have nothing to talk to..... but still!
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Posters who keep making thread after thread..... make a thread about every thought they have apparently, i tend to ignore those posters but it does annoy me very much if they clog the main page!
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Oh no that absolutely sucks! I can imagine how you feel, hopefully it's because of the warmer weather and it subsides again but i can understand the fear you have and the aversion against the meds!
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It's hot here as well so i was very scared that it would happen to me too but thank God it hasn't.... Hope it goes away again soon!!
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Ah no!! That sucks... I'm sorry!
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that was the case in January as well, stress is a major trigger.... if only we could avoid it forever...
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Oh no!! That's scary! Are you going through some stress perhaps? Hope it goes away soon.... This is also what I'm terrified of, that it will come back....
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What are you listening to? Part 13
sara-pezzini replied to pinballwizard's topic in Off Topic's Topics
Lol! I first heard it on the Blacklist and immediately went to YouTube and have since listened to different versions of it, the live version on Conan o'Brien which is amazing!! and today a version where they removed the music and was just his voice... chills all over!! They call it an a-capella version.... I'm seriously obsessed with this song lol..... so much more than with the original.... -
What are you listening to? Part 13
sara-pezzini replied to pinballwizard's topic in Off Topic's Topics
I'm so very impressed by "Disturbed-the sound of silence" Cannot stop listening to it, at least 10 times in a row every day It is so haunting and so beautiful!! I first heard it on the Blacklist.... so emotional! -
So good to hear!! What a relief!
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How are you today?
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Ah no!! Thát is such crap, i feel for you....i think the meds are still fine and indeed best not to wait too long, maybe just the 200 will do the trick....
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fingers crossed! Any updates on the little one?
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Oh no I'm so sorry! (((Hugs)))
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God that sounds so scary!! man i would freak out! Good that the other children didn't witness it But yes that i surely stressful enough to trigger the pain! Would be great if we could just avoid all stress all the time but alas.... Pain in the bum made me laugh given the circumstances lol But yes you're right! And compared to everything I've been through this is nothing!
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