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asperger syndrome questionnaire


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Dear everyone,

 

I am the mother of a child with AS.

I am also conducting a very small study to complete my Master. The theme of my study is the connection between the roles involved in parenting a child with AS (advocacy, management, social skill training, home based OT and PT training etc...) and high stress.

The goal is to show the need for practical help and useful resources for AS kids and their parents.

 

Your help in estabilishing the connection is very much needed and appreciated. I hope to get some replies.

Thank you,

 

Angela Hardin

Please email your replies to:

 

email removed

 

 

 

ASPERGER QUESTIONNAIRE FOR PARENTS

 

1. Are you the primary caregiver ? Age?

 

2. What is your relationship to child ?

 

3. Child's date of birth

 

4. Do you have any other children? How many?

 

5. How old was your child when you first recognized he/she was having difficulties? Please describe specific early problems

 

6. What caused you to seek medical advice for your child ?

 

7. How old was your child when a diagnosis of Asperger was made?

 

8. Before he/she was diagnosed with AS was there any other diagnosis made? How many specialists did it take to get the correct diagnosis?

 

9. What was your reaction to the diagnosis ?

 

10. What was your spouse reaction?

 

11. Who did you share the diagnosis of Asperger with, when and why? What was their reaction?

 

12. How did you learn more about Asperger?

 

13. Do you feel that having a child with AS has changed and expanded your role as a parent to something often hard to manage?

 

14. What roles among the ones listed below do you find yourself constantly forced to assume in order to help your child ?

a. Advocate

b. Mediator - Please specify : Between your child and the other siblings? Between your child and your spouse? Between playmates? Other? -

c. Teacher

d. Homeschool teacher

e. Physical and Occupational home therapist

f. Spokesperson

g. Time manager

h. Advisor

i. Manager/secretary

j. Other

 

15. Has your child been involved in any special educational program (special education, 504 plan, special school, homeschooling etc.)

 

16. Have you ever considered/tried homeschooling? Why? Please explain.

 

17. Do you find advocacy for your child to be often necessary? In what context? School? Community activities? Other?

 

18. Have you been able to find helpful community services and resources (such as community groups, support groups, play groups, family interactions or respite care) to help you care for your child? Were they easy to obtain?

 

19. Have you found the Health Care system easy to use /handle when it comes to obtain services for your AS affected child? Or do you feel that everything your child and family needs has to fight over?

 

20. What services have you obtained? Physical therapy? Occupational therapy? Behavioural therapy? Other? Did they help?

 

21. What are some everyday tasks that you find difficult to complete because of your

child ? Are they always difficult to do? Do they became more difficult each time?

 

22. If married , do you feel that raising your AS child puts added pressures on your marriage? What pressures do you feel? Do you think your spouse feels these pressures also? Do you experience these pressures often?

 

23. Do you feel you constantly endure high stress ?

 

24. Do you find yourself always trying to predict and prevent your child's next tantrum, or behaviour that might be annoying/irritating to others, and create unpleasant controversy? Does that also happen in the primary family circle?

 

25. Do you have a reliable support system that helps you reduce stress ? Family? Friends? Support group? Internet group? Religious organization?

 

26. Do you have an hobby or share in activity (exercise, etc..) that helps relieving stress?

 

27. How do you cope with having a child with a chronic disability? Do you ever become angry about it? Do you cry about it? Often? Do you ever feel like running away? Do you feel like turning to alcohol or food to help you cope? Just how do you cope?

 

28. Do you often think of your child's future ? How often? What do you worry most about? His/her safety? Financial stability? Mental stability?

 

Thank you !

 

email removed

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Hi angeljh,

 

Welcome to eNotalone.com and thank you for coming to us with your questions.

 

I am sorry to hear that so far noone was able to help you. I am even not sure what this syndrome is all about. I have looked around for you if I could help you with additional information, but I am sure that if you are even making a case study and having a child that has this syndrome, you have done pretty much the same.

 

I hope that you will pass your Master and wish you good luck in it, though. I also wish you strength and wishdom helping your child through its future as best as possible.

 

~ SwingFox ~

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