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Thread: Trying not to feel discouraged!

  1. #11
    Platinum Member smackie9's Avatar
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    Do some of your own research, because knowledge is power. The more you know, the better the questions to ask. From my experience not all doctors are the same...some are quacks. Check out this new one...there will be ratings and a bio available on line about them. This might give you a chance to research other doctors and options too. Nothing wrong with getting a second, third or fourth opinion. Also what helps, is keeping a positive attitude. Don't let this disappointment set you back, but motivate your to focus harder on getting better. I wish you a Happy Birthday, and hope you are surrounded with love and laughter. Birthday cake and ice cream is a pretty good distraction :)

  2. #12
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    Originally Posted by limichelle
    Thank you all for the posts!

    Billie I think this pain is a necessary evil now that you mention it. As disappointed as I am the surgery didnít go the way planned and that Iím in pain and allergic to the incisions. I realize now the exact location of the mass is pin pointed. Thatís a step ahead of where I was back in November!
    So basically you have received good news!
    The surgery served a good purpose. Sometimes exploratory surgery is necessary because CT scans, X-rays, MRIís are only indicative of what may or may not be happening.

    Before scans etc you would have had numerous surgeries by now just to find out whatís going on.
    At least they were able to pinpoint where to look with this past surgical procedure.

    You must feel somewhat grateful for that!?

    I donít think you are being unnecessarily passed on from one Dr to the next. You are simply being referred to more specialised Doctors based on increased findings and knowledge which can only have been discovered based on procedures so far.

    If you feel uninformed or donít understand you can ALWAYS ask for clarity.

    I think you are being treated appropriately medically.

  3. #13
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    Hi everyone,

    An update! I saw the Urologist and he is taking a more conservative approach which is good. He is doing an in office cystoscope just to look at the mass and see what the next step is. Heís not just jumping into surgery. Heís not doing the cystoscope until my body has calmed down. So not until a month from now.

    I ended up in the Emergency room. My incisions have a staph infection. So Iím on an antibiotic.

    I feel more hopeful about the outcome of this.

  4. #14
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    Originally Posted by Billie28
    So basically you have received good news!
    The surgery served a good purpose. Sometimes exploratory surgery is necessary because CT scans, X-rays, MRIís are only indicative of what may or may not be happening.

    Before scans etc you would have had numerous surgeries by now just to find out whatís going on.
    At least they were able to pinpoint where to look with this past surgical procedure.

    You must feel somewhat grateful for that!?

    I donít think you are being unnecessarily passed on from one Dr to the next. You are simply being referred to more specialised Doctors based on increased findings and knowledge which can only have been discovered based on procedures so far.

    If you feel uninformed or donít understand you can ALWAYS ask for clarity.

    I think you are being treated appropriately medically.

    What does allergic to incisions mean? Btw? Iíve never heard of that . Does that mean if you cut your finger with a knife you get an allergic reaction? Lol Iím guessing you were being funny 😂

    Thank you for the reassurance.

    I was realizing after reading what you wrote I needed to be more patient. I was thinking eight months of back and forth was too long.

    As for the incisions, I was referring too having an allergic reaction to the glue she used. It turned out to be a staph infection.

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  6. #15
    Platinum Member Wiseman2's Avatar
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    Good to hear. Yes your body needs a break from the invasive procedures.

  7. #16
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    Iím going to see a Urologist Oncologist instead of follow up with this urologist. I was supposed to see one from the start but the office got things mixed up.

  8. #17
    Platinum Member Rose Mosse's Avatar
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    I'm glad your oncologist is being more conservative. Checking in today to see how you are doing. Are you still in hospital? I'm so glad you have some time to recover.

  9. #18
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    Hi Rose!

    Iím at home now. I feel miserable with the staph infection in my incisions. Iím looking forward to the antibiotic clearing it up.

    Iím seeing a Urologist oncologist June 24th. There was a mix up at the office. The doctor I saw yesterday decided my case was too complex. Iím happy he had the integrity to know that.

  10. #19
    Platinum Member Rose Mosse's Avatar
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    You are such a trooper. I really admire you. Keep up your spirits somehow, sleep as much as you can. I hope you have something for the pain.

    That's good that the doctor decided to forego your case if he doesn't feel confident handling it but I hope that oncologist can explore some answers with you.

  11. #20
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    What antibiotic are you on for staph? Have they followed up with the lab to check if the antiobiotic is an appropriate one and determined if MRSA or not?

    Infection makes more sense than an allergic reaction 😀
    Never assume.
    As important as it is for you to feel well informed , itís just as important for you to inform your Dr of any symptoms.

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