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Thread: Living with a chronic illness

  1. #11
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    Originally Posted by ~Seraphim ~
    I hear you . I have Trigeminal Neuralgia and migraines and arthritis . Right now I am a remission from TN and I just go great gunnels cause who knows when it will return.
    Trigeminal neuralgia is curable!

  2. #12
    Forum Supporter ~Seraphim ~'s Avatar
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    Not always they try everything else under the sun before MVD. And MVD doesnít always work . I am in a support group and there are thousands of people where MVD doesnít work where there or theyíve had like five of them. And the cause of TN is not always compression.If Itís caused by an injury youíre SOL .
    Originally Posted by Billie28
    Trigeminal neuralgia is curable!

  3. #13
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    Originally Posted by ~Seraphim ~
    Not always they try everything else under the sun before MVD. And MVD doesnít always work . I am in a support group and there are thousands of people where MVD doesnít work where there or theyíve had like five of them. And the cause of TN is not always compression.If Itís caused by an injury youíre SOL .
    MVD is the first attempt which cures many. But not all.
    Repeating the procedure is futile.
    I suggest you switch specialist who will actually do a more invasive procedure.

  4. #14
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    Well, my specialist is only willing to do meds until the side effects are so debilitating you canít take it. That is what is done in countries where you donít pay for your healthcare . Plus I am the first patient he has seen with it in 10 years . I live in a very rural part of the province and there are no specialists anywhere so you drive hundreds of miles get any ď specialist and you go on lists that are years long .
    Originally Posted by Billie28
    MVD is the first attempt which cures many. But not all.
    Repeating the procedure is futile.
    I suggest you switch specialist who will actually do a more invasive procedure.

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  6. #15
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    Originally Posted by ~Seraphim ~
    Well, my specialist is only willing to do meds until the side effects are so debilitating you canít take it. That is what is done in countries where you donít pay for your healthcare . Plus I am the first patient he has seen with it in 10 years . I live in a very rural part of the province and there are no specialists anywhere so you drive hundreds of miles get any ď specialist and you go on lists that are years long .
    The meds you would be given are those meds that treat epilepsy.
    But it doesnít really help with TN. And the side effects of those meds are not great.

    You are the first patient he has seen with it in 10yrs? So likely his medical treatment of it is also 10 yrs old.

    If you donít want to suffer this anymore, go see a Dr who is medically up to date!?
    It is as I said curable.

  7. #16
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    However, I am in a natural remission right now and donít take meds, but I know it will return. My last remission was 6 years long and I am hoping this one is too. I am 2 years into remission. I have had it for 14 years.

  8. #17
    Forum Supporter ~Seraphim ~'s Avatar
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    Originally Posted by Billie28
    The meds you would be given are those meds that treat epilepsy.
    But it doesnít really help with TN. And the side effects of those meds are not great.

    You are the first patient he has seen with it in 10yrs? So likely his medical treatment of it is also 10 yrs old.

    If you donít want to suffer this anymore, go see a Dr who is medically up to date!?
    It is as I said curable.
    Okay, maybe youíre not understanding how the system works here or the severe shortage of doctors. I will leave it at that . I KNOW the drugs are for epilepsy. I am not mentally deficient. They DO help with pain at least for ME. They donít help everyone. They calm the damaged nerve enough that it doesnít misfire.

    Show me the literature where it says it is so easily curable.

  9. #18
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    For the OP.
    [Register to see the link]

  10. #19
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    Physical therapy, a good eating and activity/exercise program as well as talk therapy can help ease pain and cope without becoming dependent on pain killers.

  11. #20
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    Originally Posted by ~Seraphim ~
    Okay, maybe youíre not understanding how the system works here or the severe shortage of doctors. I will leave it at that . I KNOW the drugs are for epilepsy. I am not mentally deficient. They DO help with pain at least for ME. They donít help everyone. They calm the damaged nerve enough that it doesnít misfire.

    Show me the literature where it says it is so easily curable.
    Iím saying it is curable with surgery.
    Itís irrelevant what your system is or the shortage of Drís.
    In your case you havenít been cured because of that system and shortage. That doesnít mean itís not curable.

    Iím sorry that someone else responded with physical therapy etc and not becoming drug dependant.
    I do understand your pain.
    TN is dubbed the suicide disease because many have ended their life because of it.

    But unless you have had surgery to seperate the nerve touching something it shouldnít, you canít say itís not curable.
    Unfortunately your health system is allowing you to suffer.
    Itís so wrong.

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