sara-pezzini Posted November 1, 2017 Share Posted November 1, 2017 Was scheduled for brain surgery tomorrow morning to remove part of a tumor. Tumor cause me many problems, most important of all trigeminal neuralgia which has gotten too bad now.... so many meds plus morphine.... this is no life but the pain i can't live with.... So remove tumor was the plan. Risky scary plan with a big chance of lasting damage... Was in the hospitalc today, got checked in, got my Iv And then the doctor comes in and tells me it won't happen because they have no room at the ICU tomorrow and i need to stay in the ICU because of the risk.... We had to go home again and I'm totally crushed.. Was prepared for it mentally and physically and then this blow..... In January the same thing happened with an MVD surgery, but at that time i was still home when they cancelled. Now i was there with an IV.... Brother is coming over from Sweden again next week and like in January, for nothing! I'm so upset! Boyfriend just left, he came over after work to be here for a while but now I'm alone and I'm crying so i just come on here because i can't sleep now..... Link to comment
abitbroken Posted November 1, 2017 Share Posted November 1, 2017 That stinks. When can they reschedule you? Link to comment
sara-pezzini Posted November 1, 2017 Author Share Posted November 1, 2017 they hope to do it November 13th.... so again prepping the house and myself, especially mentally. I was so ready now.... and i want it to be over! Know if it works or not, know if there are damages, know what i will have to live with... Link to comment
Hollyj Posted November 1, 2017 Share Posted November 1, 2017 I am so sorry. Is it definitely scheduled for tomorrow? I can't imagine what you are going through, you have dealt with so much. Hugs Link to comment
Starlight925 Posted November 1, 2017 Share Posted November 1, 2017 Sara, I cannot imagine what you are going through. My heart goes out to you, and I hope they can reschedule this soon. Hugs to you. Link to comment
sara-pezzini Posted November 1, 2017 Author Share Posted November 1, 2017 Holly it was definitely scheduled for tomorrow but now its ostponed to maybe hopefully the 13th...... Link to comment
Hollyj Posted November 1, 2017 Share Posted November 1, 2017 Omg! I'm sorry. What country are you in? Link to comment
sara-pezzini Posted November 1, 2017 Author Share Posted November 1, 2017 The Netherlands Link to comment
mines Posted November 1, 2017 Share Posted November 1, 2017 Sara, I'm so sorry! This is crushing. It must be horrible to do all the planning and waiting, and have family plans change - and then to have it cancelled/postponed last minute. Ugh. Fingers crossed the rescheduled date goes through - big (hugs) so sorry for you dear. Link to comment
sara-pezzini Posted November 1, 2017 Author Share Posted November 1, 2017 It was like a punch in the gut really.... and not just for me but everyone around me was waiting for tomorrow, nervous for the day, plans had been made to come visit me, i was given help around the house after the surgery, have to postpone that as well. Have a freezer filled with 30 meals for after the surgery but nothing to eat today. The house is clean, I managed to not get a cold but now that will be tricky again the coming 2 weeks... I'm just very upset..... it's not a small surgery, this is major brain surgery that i was really dreading and scared about and they just cancel, just like that....and so i will have to deal with the anxiety for longer... Sucks! Crap! Link to comment
HeartGoesOn Posted November 2, 2017 Share Posted November 2, 2017 That's a terrible let down, Sara. I'm so sorry, and I'm sending you lots of hugs. Fingers crossed for the 13th! Link to comment
tina-rocks Posted November 2, 2017 Share Posted November 2, 2017 I am sooo, sorry this is happening to you. Words cannot express how you must be feeling right now. I don't know what to say or do to help. I can only offer an ear for you rant at or shout frustration, or just talk to if you would like. Christina x Link to comment
Seraphim Posted November 2, 2017 Share Posted November 2, 2017 Oh darling! I am so very sorry. 😪 Link to comment
Hollyj Posted November 2, 2017 Share Posted November 2, 2017 Can you change hospitals? Link to comment
catfeeder Posted November 2, 2017 Share Posted November 2, 2017 My heart goes out to you, Sara. (((Holding you in my thoughts.))) Cat Link to comment
sara-pezzini Posted November 2, 2017 Author Share Posted November 2, 2017 Can you change hospitals? No this one is specialised in this kind of surgery and the neurosurgeon i have is the best here so I'm glad i have him and i want him! He did my gamma knife radiation, he did my MVD in March and i really trust him.... this surgery is hard enough so you do need that faith in your surgeon..... Link to comment
sara-pezzini Posted November 2, 2017 Author Share Posted November 2, 2017 just got flowers and a call from the hospital, have to be there next Friday for an mri and then have to be back Sunday evening and will be admitted then. Surgery will be Mondays at 8am! Link to comment
Hollyj Posted November 2, 2017 Share Posted November 2, 2017 No this one is specialised in this kind of surgery and the neurosurgeon i have is the best here so I'm glad i have him and i want him! He did my gamma knife radiation, he did my MVD in March and i really trust him.... this surgery is hard enough so you do need that faith in your surgeon..... Totally agree. In the States, many physicians will will out of several hospitals. But, they must also have the necessary equipment. Link to comment
sara-pezzini Posted November 10, 2017 Author Share Posted November 10, 2017 been to the hospital today, had small tests done to see where I'm at now and how that will be after the surgery, walk a straight line, stand on toes and heels (couldn't stand on heels btw) close eyes and point to nose etc... They put 9 small plastic caps on my head to mark special points on the mri and will help the surgeon decide where what is. They did an mri and asked me if i want CPR..... that question always hits me.... Got my wristband on and they informed me that the surgery will be Tuesday morning instead of Monday.... so i have to be there Monday evening. Oh well one more day....but that did mean that i will get a singles room which is extremely important for me for personal reasons... Sunday that wouldn't have happened.... And since i said a while ago that i rather move they surgery then stay in a 4 person room, they listened! And understood! So I'm a patient now but at home.... have to try to keep the plastic caps on all weekend! Lol.... oh well..... Tomorrow brother from Sweden comes over..... 10 days went by really fast! But if it had been the old date i would have come home yesterday! Oh well..... Link to comment
catfeeder Posted November 11, 2017 Share Posted November 11, 2017 Thank you for the update, Sara. With you in spirit. Will continue to seek updates and hope brother or another loved one might post here to tell us of your success. Write more this weekend if it helps. ((((Big HUG)))) Cat Link to comment
sara-pezzini Posted November 11, 2017 Author Share Posted November 11, 2017 Thank you! Didn't have a good night cause sleeping with those caps on is uncomfortable and had some nightmares about me dying... ugh.... And on top of everything the pain started again! Cannot up my morphine cause anaesthesia is calculated on what i have been taking so far and don't want to add to that.... It's still in the early stages ago no electric shocks yet but that can come fast. So I'm in for a rough weekend! No one knows that I'm on this site which is why I'm able to post what i want, so unfortunately you all have to wait until I'm able to post myself again.... hopefully Wednesday! Link to comment
catfeeder Posted November 11, 2017 Share Posted November 11, 2017 Thank you! Didn't have a good night cause sleeping with those caps on is uncomfortable and had some nightmares about me dying... ugh.... And on top of everything the pain started again! Cannot up my morphine cause anaesthesia is calculated on what i have been taking so far and don't want to add to that.... It's still in the early stages ago no electric shocks yet but that can come fast. So I'm in for a rough weekend! No one knows that I'm on this site which is why I'm able to post what i want, so unfortunately you all have to wait until I'm able to post myself again.... hopefully Wednesday! Alway looking forward to your posts, and I hope the pain subsides. Project your mind forward toward enjoying a happy and healthy Wednesday--feel yourself going there. Hang in there, honey! Love, Cat Link to comment
sara-pezzini Posted November 13, 2017 Author Share Posted November 13, 2017 I've been admitted to the hospital and am in my bed now.... It's 10.16pm here and the surgery is tomorrow at noon.... so in 16 hours from now..... Link to comment
Jibralta Posted November 13, 2017 Share Posted November 13, 2017 Hope everything goes smoothly for you! Link to comment
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