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Thread: Any UC/Crohns sufferers out there?

  1. #21
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    Can you request the surgery, or do you need to wait until it is offered to you? chi

  2. #22
    Platinum Member Blue68's Avatar
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    Originally Posted by chitown9
    Can you request the surgery, or do you need to wait until it is offered to you? chi
    Hi Chi. I think, in general, it is offered to you when all else has failed. I am assuming, however, that if someone was finding their condition/symptoms difficult to cope with at any level you could approach your specialist about the possibilities of surgery.

  3. #23
    Originally Posted by Blue68
    I was diagnosed with Ulcerative Colitis (UC) - a form of Inflammatory Bowel Disease - over 10 years ago. In the majority of that time I have had barely any flare ups. However, in the past 2 years I have had an almost unmanageable flare-up. Steroids seem to bring a flare up under control but these are for short term use only. Once off these and on more suitable long term use medication the flare ups seem to come back. I am now in the midst of a really horrible flare up that is both painful and exhausting.

    I was hoping that there maybe others out there battling with this chronic disease and whether they have any advice on coping with it.

    Thanking you in advance.
    I have UC, I had it since I was in 4th grade, I am 27 and havent had any problems since I was 18.... SMOKE CANNABIS OR EAT IT!!!!! It WILL go away. TRUST ME. Miracles that grow in the ground.

    *edit*
    Oh and also I have went months without smoking and have had no issues. Trust me just smoke or eat Cannabis aka pot aka weed aka marijuana. It really works, I stopped for a long time to test it and it came back, started smoking and eating it again and it went away!
    Last edited by BoringAsItGets; 04-24-2017 at 06:18 AM. Reason: more info

  4. #24
    Platinum Member faraday's Avatar
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    There have been studies done on how smoking (cigarettes) can minimize flare ups with UC. My doctor joked that it's the only time smoking is beneficial...but it will kill you in other ways. My mom is dying from lung cancer right now...she smoked in her 20's.

    Has your flare up passed yet?

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  6. #25
    Platinum Member Blue68's Avatar
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    Originally Posted by BoringAsItGets
    I have UC, I had it since I was in 4th grade, I am 27 and havent had any problems since I was 18.... SMOKE CANNABIS OR EAT IT!!!!! It WILL go away. TRUST ME. Miracles that grow in the ground.

    *edit*
    Oh and also I have went months without smoking and have had no issues. Trust me just smoke or eat Cannabis aka pot aka weed aka marijuana. It really works, I stopped for a long time to test it and it came back, started smoking and eating it again and it went away!
    Thank you for your advice BAIG. However, I've never smoked weed in my life (well I think I had one drag once) so it is unlikely that I will start now. But you know what "they" say .... never say never! Like, faraday says though, what might benefit us in one way can hinder us in others.
    Last edited by Blue68; 05-01-2017 at 11:52 AM.

  7. #26
    Platinum Member Blue68's Avatar
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    Originally Posted by faraday
    There have been studies done on how smoking (cigarettes) can minimize flare ups with UC. My doctor joked that it's the only time smoking is beneficial...but it will kill you in other ways. My mom is dying from lung cancer right now...she smoked in her 20's.

    Has your flare up passed yet?
    I am so sorry to hear about your mom faraday. My heart goes out to you.

    I am half way through a course of steroids and although my symptoms have improved they aren't yet under control completely. Usually, the steroids take effect straight away. I am tapering off now so I'm not sure what is going to happen. It just feels like it is going on forever.

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