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Thread: trigeminal neuralgia?

  1. #421
    Platinum Member sara-pezzini's Avatar
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    Ooh scary, i saw the thread was updated and i got worried!! Glad to read you're still doing well!!!!! Me too, for 13 months now already and 11 months free of meds! Will be a great Christmas for both is us, something to be really grateful for!! Xxx

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    Forum Supporter ~Seraphim ~'s Avatar
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    Originally Posted by sara-pezzini
    Ooh scary, i saw the thread was updated and i got worried!! Glad to read you're still doing well!!!!! Me too, for 13 months now already and 11 months free of meds! Will be a great Christmas for both is us, applying to be really grateful for!! Xxx
    I am so glad you are still well , Sara!! Yes, I have no twinges at all !! I am so so happy. It will be a blessed Christmas!

  3. #423
    Platinum Member sara-pezzini's Avatar
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    Oh so good to hear!!! Been reading back our threads a while ago and unbelievable what we've been through! No more taking things for granted, feel blessed every day, especial given how extremely difficult it is to get rid of this pain and how it doesn't happen more often than that it is successful!

  4. #424
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    Originally Posted by sara-pezzini
    Oh so good to hear!!! Been reading back our threads a while ago and unbelievable what we've been through! No more taking things for granted, feel blessed every day, especial given how extremely difficult it is to get rid of this pain and how it doesn't happen more often than that it is successful!
    Exactly. Be so happy for every single minute without that pain.

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  6. #425
    Platinum Member sara-pezzini's Avatar
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    Indeed! But also still terrified, i don't know what i would do if it ever came back, last year i thought oh a year without pain sounds so wonderful but it is too short, a year is nothing!

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    Originally Posted by sara-pezzini
    Indeed! But also still terrified, i don't know what i would do if it ever came back, last year i thought oh a year without pain sounds so wonderful but it is too short, a year is nothing!
    I know eventually mine will be back but I try to ignore that thought . Wishing you a life forever without it ! Because I still get remissions they probably won’t do an MVD until I am much worse.

  8. #427
    Platinum Member sara-pezzini's Avatar
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    Yes great that you have to many pain free years in between but still the knowing it'll be back is terrible, like a ticking timebomb.... All i can say is if it ever comes to it, an MVD is not as bad as you anticipate! It's no Picknick but quite doable

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    Thanks Sara!

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    Having a flare today. My tongue is on fire. 😩

  11. #430
    Platinum Member sara-pezzini's Avatar
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    Oh no!!!!! Hugs

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