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Thread: trigeminal neuralgia?

  1. #411
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    Having another flare because of the extreme heat.

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    Platinum Member sara-pezzini's Avatar
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    It's hot here as well so i was very scared that it would happen to me too but thank God it hasn't....
    Hope it goes away again soon!!

  3. #413
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    I have been feeling pain daily for a few months now. I really donít want to go back to meds . Iím not desperate at this point but I really donít want to be either .

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    Platinum Member sara-pezzini's Avatar
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    Oh no that absolutely sucks! I can imagine how you feel, hopefully it's because of the warmer weather and it subsides again but i can understand the fear you have and the aversion against the meds!

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  6. #415
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    Last night the CN Tower was lit up for Trigeminal Neuralgia awareness!!! I was driving through Toronto last night on my way home and saw it lit up !

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    Platinum Member sara-pezzini's Avatar
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    Wow!! Here in Holland there is zero attention for trigeminal neuralgia awareness day, although i remembered on my own... This needs to be a worldwide thing and there needs to be more awareness to maybe eventually find a cure for everyone!
    I am still terrified that it'll come back one day, i think i will always live with that fear

  8. #417
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    Originally Posted by sara-pezzini
    Wow!! Here in Holland there is zero attention for trigeminal neuralgia awareness day, although i remembered on my own... This needs to be a worldwide thing and there needs to be more awareness to maybe eventually find a cure for everyone!
    I am still terrified that it'll come back one day, i think i will always live with that fear
    I was so excited to see it!

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  10. #419
    Platinum Member sara-pezzini's Avatar
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    Wow that's so very special!!! Yes that would absolutely give me chills if I saw that

  11. #420
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    I am happy to still be in remission!

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