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Thread: trigeminal neuralgia?

  1. #21
    Platinum Member sara-pezzini's Avatar
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    Just be very careful!
    They warn you about that, i do ride on a moped and that doesn't go fast and if I'm careful it's okay but i just notice the traffic goes to fast and my mind has trouble keeping up.

    Hopefully you can stay on this low dose and then your body adjust quicker, the dose I'm on i cannot and am not allowed, insurance wise to drive for a year!

  2. #22
    Forum Supporter ~Seraphim ~'s Avatar
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    Now that I have some concept of reality I can't even explain how bad the pain was. When you have pain that bad you aren't even in reality anymore.

  3. #23
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    Originally Posted by sara-pezzini
    Just be very careful!
    They warn you about that, i do ride on a moped and that doesn't go fast and if I'm careful it's okay but i just notice the traffic goes to fast and my mind has trouble keeping up.

    Hopefully you can stay on this low dose and then your body adjust quicker, the dose I'm on i cannot and am not allowed, insurance wise to drive for a year!
    Yes they did warn me initially not to drive and see how I adjust. They said after I adjust I will likely be able to drive.

  4. #24
    Platinum Member sara-pezzini's Avatar
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    Originally Posted by Victoria66
    Now that I have some concept of reality I can't even explain how bad the pain was. When you have pain that bad you aren't even in reality anymore.
    Yes indeed, you're outside reality, nothing matters anymore, you don't care about anything other then the pain to stop.
    It's very depressing and debilitating.
    Nothing is fun anymore and you can see no joy, no happiness, no colors.....
    At one point i didn't want to wake up anymore....didn't care.

    Yes your body will adjust pretty quickly with that dose, i think a week or two at the most.
    Also obviously careful with alcohol and no grapefruit or grapefruit juice.
    I have to think about that one, sometimes i like to mix a few juices and there's always grapefruit in it but now i can't.

    And I'm luckily not a big alcohol drinker but every now and then i take a bit of wine
    well haha that makes me extremely dizzy then cause the both enhance each other.
    So i do that at home only

    You learn to deal and accept, sort of....

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  6. #25
    Platinum Member sara-pezzini's Avatar
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    Oh and yes when the pain is gone you forget how it felt! Thank God!
    And you can't remember how you felt and why

  7. #26
    Forum Supporter ~Seraphim ~'s Avatar
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    Originally Posted by sara-pezzini
    Yes indeed, you're outside reality, nothing matters anymore, you don't care about anything other then the pain to stop.
    It's very depressing and debilitating.
    Nothing is fun anymore and you can see no joy, no happiness, no colors.....
    At one point i didn't want to wake up anymore....didn't care.

    Yes your body will adjust pretty quickly with that dose, i think a week or two at the most.
    Also obviously careful with alcohol and no grapefruit or grapefruit juice.
    I have to think about that one, sometimes i like to mix a few juices and there's always grapefruit in it but now i can't.

    And I'm luckily not a big alcohol drinker but every now and then i take a bit of wine
    well haha that makes me extremely dizzy then cause the both enhance each other.
    So i do that at home only

    You learn to deal and accept, sort of....
    I'm not much for grapefruit or alcohol so that should be an easy one. yeah hopefully I adjust quickly and I can go back to work.

  8. #27
    Forum Supporter ~Seraphim ~'s Avatar
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    Originally Posted by sara-pezzini
    Oh and yes when the pain is gone you forget how it felt! Thank God!
    And you can't remember how you felt and why
    The sucky part is now I have still have a migraine on the other side.

  9. #28
    Platinum Member sara-pezzini's Avatar
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    Yeah sadly these meds don't work for the migraine so that sucks!
    I hope you're feeling better soon and back to work...
    keep me updated

  10. #29
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    [QUOTE=sara-pezzini;6541031]Yeah sadly these meds don't work for the migraine so that sucks!
    I hope you're feeling better soon and back to work...
    keep me updated
    I will.

  11. #30
    Platinum Member journeynow's Avatar
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    Big hugs, Victoria, it sounds horrendous. Wishing you all the comfort and healing possible, and good doctors.

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