Facebook share
LinkedIn share
Google plus share
Twitter plus share
Give Advice
Ask For Advice
Page 1 of 98 1234 ... LastLast
Results 1 to 10 of 977

Thread: " In a box not a bottle" Asperger's revealed

  1. #1
    Forum Supporter ~Seraphim ~'s Avatar
    Join Date
    Jul 2006
    Location
    Out of suffering have emerged the strongest souls; the most massive characters are seared
    Age
    53
    Posts
    36,997
    Gender
    Female

    " In a box not a bottle" Asperger's revealed

    I hope in this journal people learn to understand people with autism. " In a box, not a bottle" is a private joke between me and my son. It is how we describe his experience with Asperger's .

    link removed

  2. #2
    Forum Supporter ~Seraphim ~'s Avatar
    Join Date
    Jul 2006
    Location
    Out of suffering have emerged the strongest souls; the most massive characters are seared
    Age
    53
    Posts
    36,997
    Gender
    Female
    This refers to the Aspergers child’s rigidity, obsessions, perseverations, and need for structure/routine/order.

    A. Rules are very important as the world is seen as black or white:
    Takes perfectionism to an extreme — one wrong answer is not tolerable, and the child must do things perfectly
    Has difficulty with any changes in the established routine
    Has a set routine for how activities are to be done
    Has rules for most activities, which must be followed (this can be extended to all involved)

    B. The child has few interests, but those present are unusual and treated as obsessions:
    Patterns, routines, and rituals are evident and interfere with daily functioning (note: this is driven by the child’s anxiety; the world is confusing for her; she is unsure what to do and how to do it; if she can impose structure, she begins to have a feeling of control)
    Has developed narrow and specific interests; the interests tend to be atypical (note: this gives a feeling of competence and order; involvement with the area of special interest becomes all-consuming)
    Displays rigid behavior:
    Has unusual fears
    Has narrow food preferences
    Carries a specific object
    Plays games or completes activities in a repetitive manner or makes own rules for them
    Insists on driving a specific route
    Arranges toys/objects/furniture in a specific way
    Is unable to accept environmental changes (e.g., must always go to the same restaurant, same vacation spot)
    Is unable to change the way she has been taught to complete a task
    Needs to be first in line, first selected, etc.
    Erases over and over to make the letters just right
    Colors with so much pressure the crayons break (e.g., in order to cover all the white)
    Only sits in one specific chair or one specific location
    Cannot extend the allotted time for an activity; activities must start and end at the times specified
    Selects play choices/interests not commonly shared by others (e.g., electricity, weather, advanced computer skills, scores of various sporting events) but not interested in the actual play (note: this could also be true for music, movies, and books)
    Has narrow clothing preferences
    Feels need to complete projects in one sitting, has difficulty with projects completed over time

    C. Failure to follow rules and routines results in behavioral difficulties. These can include:
    Anxiety
    Tantrums/meltdowns (e.g., crying, aggression, property destruction, screaming)
    Non-compliant behaviors
    Increase in perseverative/obsessive/rigid/ritualistic behaviors or preoccupation with area of special interest, engaging in nonsense talk
    Inability to prevent or lessen extreme behavioral reactions, inability to use coping or calming techniques
    Emotional responses out of proportion to the situation, emotional responses that are more intense and tend to be negative (e.g., glass half-empty)

    Children with Aspergers and High-Functioning Autism have very few things that really interest them, but those interests are very important and may help them alleviate anxiety. They also cope better when there are set routines in their lives. Because change causes anxiety, Aspergers children will want to live by rigid rules that they construct for themselves. They want their own rules so that they can be the “king” or “ruler” -- and they have a difficult time understanding why society has a different set of rules.
    link removed

  3. #3
    Forum Supporter ~Seraphim ~'s Avatar
    Join Date
    Jul 2006
    Location
    Out of suffering have emerged the strongest souls; the most massive characters are seared
    Age
    53
    Posts
    36,997
    Gender
    Female
    Autism spectrum disorder affects children of all races and nationalities, but certain factors increase a child's risk. They include:
    Your child's sex. Boys are about four times more likely to develop ASD than girls are.
    Family history. Families who have one child with ASD have an increased risk of having another child with the disorder. It's also not uncommon for parents or relatives of a child with ASD to have minor problems with social or communication skills themselves or to engage in certain behaviors typical of ASD.
    Other disorders. Children with certain medical conditions have a higher than normal risk of ASD or ASD-like symptoms. Examples of these conditions include fragile X syndrome, an inherited disorder that causes intellectual problems; tuberous sclerosis, a condition in which benign tumors develop in the brain; the neurological disorder Tourette syndrome; and Rett syndrome, a genetic condition occurring almost exclusively in girls, which causes slowing of head growth, intellectual disability and loss of purposeful hand use.
    Extremely preterm babies. Babies born before 26 weeks of pregnancy may have a greater risk of ASD.
    Parents' ages. There may also be a connection between children born to older parents and ASD, but more research is necessary to establish this link.
    link removed

  4. #4
    Forum Supporter ~Seraphim ~'s Avatar
    Join Date
    Jul 2006
    Location
    Out of suffering have emerged the strongest souls; the most massive characters are seared
    Age
    53
    Posts
    36,997
    Gender
    Female
    Asperger's is called the invisible disability. They look perfectly typical many don't have verbal tics or physical ones. They look completely and utterly typical. There is a box on our disability form that says for significant impairment you must be disabled in someway 90% of the time. To which the psychologist checked yes. There is also a box for is this a lifetime impairment with no hope of recovery to which the psychologist checked yes.

  5.  

  6. #5
    Platinum Member Fudgie's Avatar
    Join Date
    Mar 2010
    Age
    30
    Posts
    15,368
    Gender
    Female
    I sometimes think that people don't fully understand how debilitating ASD can be. In a way, I think it's like being born without a certain sense, like being born blind or deaf. We take our social skills for granted but in reality, we are a very social species and those skills are imperative for us to function. I can't imagine being born without the ability to read people, or even to start a conversation. My sister had the language development halt and didn't talk for years. I try to explain to people that having ASD isnt about being awkward alone. Some people self diagnosed and think they have ASD because they have mild social anxiety. It's so much more than that. It can be really debilitating.

    It really rings true with me that they call it the "invisible" Disorder.

    Glad you made this journal Vic. I will share my observations too.


    Sent via Tapatalk

  7. #6
    Forum Supporter ~Seraphim ~'s Avatar
    Join Date
    Jul 2006
    Location
    Out of suffering have emerged the strongest souls; the most massive characters are seared
    Age
    53
    Posts
    36,997
    Gender
    Female
    Thanks Fudgie I appreciate your support.

    People really do take their typical sociality for granted. And we learn to be social by watching other people but these children do not learn to be sociable by watching people because they don't mimic. And if you can't mimic and can't pick up on cues you can't learn it. It has to be specifically taught to you. Other children learn to be sociable automatically these children don't. It is not just being shy.

    Another problem that I've had with people is they don't understand the difference between a temper tantrum and an autistic meltdown. In a temper tantrum the child stops whenever they get what they want or they see they failed to control. And autistic meltdown is nothing like that. And autistic meltdown is like when your computer crashes and just goes absolutely crazy. Basically they are just so overwhelmed that their brain just stops functioning pretty much all together. And they don't care who's watching and they don't care who's doing what for them and it is not stopped because they get a cookie. It is not about trying to control their parents or anybody else.

    Sometimes I think a lot of people just don't want to learn about this disorder and don't care. I have had people tell me to just smack him. And I felt like shoving their own shoe down their throat. I have actually told a few people to bleep off.

  8. #7
    Platinum Member Fudgie's Avatar
    Join Date
    Mar 2010
    Age
    30
    Posts
    15,368
    Gender
    Female
    Yeah, definitely not a temper tantrum. I have worked with autistic children in the hospital I know that when they have meltdowns, I just remain calm and leave them alone for a while, let them sit and rock themselves and calm down. I don't touch or talk to them that much as they calm down because too much stimulation doesn't help. After I give them some time, I approach again and usually within several minutes, they are a lot better and return to their version of normal. Just have to let the computer "reboot".

  9. #8
    Forum Supporter ~Seraphim ~'s Avatar
    Join Date
    Jul 2006
    Location
    Out of suffering have emerged the strongest souls; the most massive characters are seared
    Age
    53
    Posts
    36,997
    Gender
    Female
    Originally Posted by Fudgie
    Yeah, definitely not a temper tantrum. I have worked with autistic children in the hospital I know that when they have meltdowns, I just remain calm and leave them alone for a while, let them sit and rock themselves and calm down. I don't touch or talk to them that much as they calm down because too much stimulation doesn't help. After I give them some time, I approach again and usually within several minutes, they are a lot better and return to their version of normal. Just have to let the computer "reboot".
    Exactly. They need time to process. They process everything at a much slower speed than we do.

  10. #9
    Platinum Member Fudgie's Avatar
    Join Date
    Mar 2010
    Age
    30
    Posts
    15,368
    Gender
    Female
    Yeah and it's not a wonder. They perceive and process sensory information VERY differently than the rest of us. It's all very intense and harsh. that's why they get overwhelmed and need time.

  11. #10
    Forum Supporter ~Seraphim ~'s Avatar
    Join Date
    Jul 2006
    Location
    Out of suffering have emerged the strongest souls; the most massive characters are seared
    Age
    53
    Posts
    36,997
    Gender
    Female
    Originally Posted by Fudgie
    Yeah and it's not a wonder. They perceive and process sensory information VERY differently than the rest of us. It's all very intense and harsh. that's why they get overwhelmed and need time.
    Yes. For co-op my son is a teacher's assistant for grade one. When he comes home he's just completely rattled. He goes into his room shuts the door and he's in there for a few hours lining up his cards. I guess that is how he " stimms" or he paces a lot.

    Another thing is he processes almost everything through his ears. It was a PD day today and when I finished work I took him out for lunch. I could see him absolutely avoid eye contact with everyone in the restaurant. When they passed by him he would just give them sideways look with his one eye. But other than that he avoids all eye contact with people he doesn't know. Then I went to the dollar store to get envelopes and he saw someone he knew from school. Usually he won't say hi or smile. Today he smiled. Then he turned to me and said I was polite right? You have always told me smiling is polite.

Page 1 of 98 1234 ... LastLast

Give Advice
Ask For Advice

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •