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Thread: " In a box not a bottle" Asperger's revealed

  1. #41
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    Sorry I couldn't find my reading glasses when I posted!

  2. #42
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    Originally Posted by Silverbirch
    Sorry I couldn't find my reading glasses when I posted!
    That is ok! We all start to get to that age where we need them or we can't find anything or see anything. Lol. I am there with you too.

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    link removed

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    Thursday I have an appointment with the children's worker to plan my son's future.

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  6. #45
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    I just had to cry tonight . I miss my child. Any parent with a child with autism or has a sibling with autism will tell you they " miss" their loved one. My son was typically social until he was 3 and then he disappeared. And I only " see" him about every 4 to 6 months. It is heart wrenching.

  7. #46
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    My brother never really developed socially at all, verbal was always fine but socially, he never developed normally. My sister, on the other hand was "normal" in her speech development until maybe 1-2ish, I don't remember the exact age, somewhere in there, I was pretty young then too. All I know is, she went from babbling like her brother to silence and there was only either silence or screaming for years after that. It was like something snatched a part of her away. I feel that's something about autism that really bothers me and it feels very cruel. "Cruel" was the only word that came to mind. When my sister became "sick" (I've said that for years), it was around the time when I started to go to church. My mind was cemented though on the issue and I never believed in God because of my siblings, because I didn't want to believe in a creator that would be so cruel to them. If I did believe, I would be too angry at the world, it was easier to not believe. (Sorry if that offends, that was me at 5-6, seeing my sibs and the pain we all felt). It was just burned in my mind and no one could ever say anything to me to change it and now it's 20 years later and I still feel the same way and I still cry about it. hell I'm crying now. It's something I've accepted because it's how I was affecting by seeing their disorders unfold.

    So I guess, you are right, I have never "met" my siblings without autism, but I miss them. I miss what they could have been. I've never seen it but I miss it.

    I'm so sorry Vic. Now you got me crying -hugs-

  8. #47
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    Awww honey I am sorry I made you cry. No ,you didn't offend me at all. It is like individual prisons in a way because they are all so different. I just miss so much the reciprocity of conversation. You can have language and be totally unable to build relationships. I would just love to hear a conversation that was not about Yu-gi-Oh.

    The only time I saw the emotional part of him in 6 month time span is exactly twice. He had an empathetic meltdown at the theatre and the other night due to a disturbing family development. He cried for a few minutes and then he was gone again and was talking about his cards.

  9. #48
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    I wonder how to get my son to accept the fact that he will be receiving a disability pension. He states that there are more deserving people in the world for a pension than him. That he's not disabled he's just different. And nobody really owes him anything.

    Also too he's been having trouble doing his journal for his co-op. Cause they ask him what he feels and what he thinks about certain things these are not discussions that come easy for him. So I have been told that I can scribe his journal for him.

  10. #49
    Platinum Member Fudgie's Avatar
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    Will your son be able to work at all in the future and the pension will supplement his income or will he be relying on that solely. I have heard of some Aspies getting "stuck" on the idea of having a disability and so I'm really glad that both your son and my brother don't view themselves as disabled but rather, just different.

    Sent from Tapatalk

  11. #50
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    The psychologist believes that he will be able to work but it has to be something that he will really enjoy ,his own special niche. He really wants to work. He doesn't want to be beholden to anyone. I think he has picked up on the idea that a government pension is stigmatizing even though it shouldn't be. He knows that his grandpa (my dad )has a disability pension and he sees his grandpa and doesn't like what he sees. So he doesn't want to become that.

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